The fact is I am on here because I have Turner's Syndrome i.e. no ovaries. It is a chromosome disorder that can lead to several life changing issues. Here's a few thoughts as to how to best support that special little lady in your life.
1) Sociospacial Awareness:
Many TS patients have a Turner Neurocognative Phenotype (hope that is spelled correctly). Basically, this means that she may have difficulty with things like learning to walk as a baby, balancing, hand-eye co-ordination, sports, typing and driving. She may have dyscalculia i.e. number blindness. So she may need extra tuition with these things at school. If learning to drive, I recommend starting out on automatic first. Try maybe a dance class or yoga to help with the hand-eye co-ordination/balance.
2) Clothes:
This is a constant source of frustration, especially as she gets older. Usually trousers and jackets will need altering. A sewing machine may be a good investment.
3) Health:
Watch out for things like weight gain and encourage her to eat a healthy diet.
Your endocrinologist may suggest cardiac checks.
Encourage her to drink enough water as TS patients are susceptible to bladder/kidney infections.
I know that there are several TS ladeez out there reading this, so please chip in your thoughts and additions to the list. xx
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